Quadriplegic Care Site Established on Internet
To assist families undertaking quadriplegic care at home, Douglas Winslow Cooper, Ph.D., husband of a quadriplegic multiple sclerosis patient, has established the Internet site quadriplegiccaresite.com, which will contain helpful information gleaned from his seven years of managing quadriplegic care for his wife.
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December 7, 2011 (FPRC) -- Walden, NY - Dr. Douglas Winslow Cooper, author, caregiver, and retired physicist, has established a Web site to facilitate sharing of information regarding the care of quadriplegic patients in their homes. Dr. Cooper’s wife has been bedridden for seventeen years, quadriplegic and ventilator-dependent for the past seven. The Coopers have benefited from around-the-clock nursing, which Dr. Cooper manages. The site’s goal is to aid others in comparable situations.
Dr. Cooper opens the site [http://quadriplegiccaresite.com] as follows:
“Welcome to our site concerning quadriplegic care at home. Issues we will be discussing include: medical home care, private home care, special issues related to disabled spouses, being successful patient advocates, and --- in many cases --- our reflections concerning multiple sclerosis diagnosis and multiple sclerosis treatment.
“At the outset, note that this is not intended to be medical advice. I am a retired Ph.D. physicist, not an M.D. physician. I will be telling you what has and has not worked for my wife, Tina Su Cooper, who was paraplegic from 1994-2004 and quadriplegic, ventilator-dependent, fed and medicated through a gastric tube, from 2004 to the present. She has received successful quadriplegic care in our home with round-the-clock nursing paid for by my IBM retiree medical benefits for the past seven years.”
“Quadriplegic care has medical, psychological, logistical, and financial implications. Pressure sores [bed sores] and respiratory and system infections, depression, lack of personnel or supplies or equipment, poverty or bankruptcy … all threaten the patient. All have serious consequences for the caregivers. All are topics appropriate to this site.”
The articles initially available at the site are:
- A Tale of Two Patients
- Quadriplegic Care
- Giving Quadriplegic Care
- Quadriplegic Care at Home
- Quadriplegic Care References
Additional material will be added to the site. Comments will be welcomed and addressed.
Send an email to Douglas Winslow Cooper of Douglas Winslow Cooper, Ph.D. (845) 778-4204
Keywords:
quadriplegic, home care, multiple sclerosis
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